Pamphlets, Books, Forms and Other Tools for Caregivers
ALZHEIMER’S DISEASE & DEMENTIA
An Introductory Guide to Alzheimer’s Disease Dementia
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22-page guide provides information and recommendations to help empower you to learn about Alzheimer’s disease and take action.
(Source: Together in This)
Preparing Your Home for Someone with Alzheimer’s
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12-page guide introduces steps to help you start creating a safer and more enriching home environment for both you and your loved one.
(Source: Together in This)
Introduction to Alzheimer’s Medications and “Off Label” Prescriptions
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14-page guide summarizes the approved and the off-label drugs which are often prescribed for treating dementia related symptoms.
(Source: Together in This)
Understanding Alzheimer’s Disease
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19-page booklet describes what happens when someone has Alzheimer’s disease and how it differs from normal aging.
(Source: http://www.nia.nih.gov/)
Alzheimer’s Disease Fact Sheet
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8-page pamphlet discusses the how the brain changes, symptoms, stages, diagnosis, treatment, and caregiver advice.
(Source: http://www.nia.nih.gov/)
Caring for a Person with Alzheimer’s
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104-page booklet addresses all aspects of care, from bathing and eating to visiting the doctor and getting respite care.
(Source: http://www.nia.nih.gov/)
The Dementias
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40-page booklet includes an overview of dementia, including its many types, risk factors, diagnosis, treatment, and research.
(Source: http://www.nia.nih.gov/)
Frontotemporal Disorder
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36-page booklet explains how FTD is diagnosed, and how to manage the symptoms, with practical advice for caregivers.
(Source: http://www.nia.nih.gov/)
Lewy Body Dementia
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43-page booklet includes an overview of LBD, including its many types, risk factors, diagnosis, treatment, and research.
(Source: http://www.nia.nih.gov/)
Home Safety for Alzheimer’s Care
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40-page booklet gives room by-room suggestions for creating a safer space for people with Alzheimer’s disease.
(Source: http://www.nia.nih.gov/)
Helping Family and Friends Understand
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2-page pamphlet describing how to tell others about the disease and how to help them communicate with the person with Alzheimer’s disease.
(Source: http://www.nia.nih.gov/)
Tips for Caregivers
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28-page booklet providing practical advice about diagnosis, communication, bathing, eating, sleep problems, medications, & more.
(Source: http://www.nia.nih.gov/)
Alzheimer’s Disease Medications
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4-page pamphlet discusses medications used to treat Alzheimer’s, including summary of approved medications, recommended dosages, and side effects.
(Source: http://www.nia.nih.gov/)
Legal and Financial Planning
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6-page pamphlet includes information about healthcare and financial planning, advance directives, and where to go for legal help.
(Source: http://www.nia.nih.gov/)
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10-page pamphlet with information on types of transportation available, tips for transit drivers, items in a travel kit, and more.
(Source: http://www.nadtc.org/)
Preventing Alzheimer’s Disease
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28-page booklet describes the latest NIA-funded research about prevention of Alzheimer’s disease and age-related cognitive decline.
(Source: http://www.nia.nih.gov/)
Alzheimers Disease Genetics Fact Sheet
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8-page pamphlet discusses the role of genetics in Alzheimer’s & what types might be inherited, as well as genetic testing and current research.
(Source: http://www.nia.nih.gov/)
Alzheimer’s Clinical Trials & Studies
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24-page booklet talks about why it’s important to join an Alzheimer’s disease clinical trial or study.
(Source: http://www.nia.nih.gov/)
Is My Home Dementia Ready Checklist
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Get started in making your home Dementia Friendly where it better serves the needs of you and your loved one.
(Source: Together in This
Hallucinations, Delusions, and Paranoia
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2-page pamphlet with caregiver tips to help you better understand these symptoms.
(Source: http://www.nia.nih.gov/)
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1-page sheet with great strategies how to have a phone conversation with a person with dementia.
(Source: http://dementiadaze.com/)
GENERAL CAREGIVING
Medicines and You:
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19-page booklet about the use and effects of medicines as you grow older.
(Source: http://fda.gov)
Starting The Conversation:
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8-page pamphlet with tips to begin the conversation with a loved one about health, legal, financial, & end-of-life issues.
(Source: http://www.eldercare.gov/)
Talking with Your Doctor:
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44-page booklet containing tips for good communication with your doctor including preparation, coordination, & discussing sensitive topics.
(Source: http://www.nia.nih.gov/)
Long-Distance Caregiving:
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48-page booklet discusses caregiving from afar with topics such as family relationships, legal issues, housing options, & advance directives.
(Source: http://www.nia.nih.gov/)
Daily Care Plan Worksheet:
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Worksheet to help caregivers create a daily plan of activities to help keep the care recipient safe and enriched.
(Source: Together in This)
Family Medical History Form
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Form for documenting a family’s medical history to help with making an accurate medical diagnosis.
(Source: Together in This)
My Medicine Record
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Form for itemizing a patient’s medications to help the care circle stay up to date.
(Source: http://www.FDA.gov)
Medical Action Plan Form
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Form for creating an action plan that anyone can follow if the care recipient’s health declines for any reason.
(Source:Together in This)
Personal Health Record
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Form for documenting a person’s medical history, helping caregivers keep information organized (external link).
(Source: http://www.nextstepincare.org/)
Person Centered Profile:
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Form to log important information about your loved one with dementia so everyone can provide better person centered care.
(Source: Together in This)
The Family & Medical Leave Act:
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Information from the department of labor regarding the latest law (external link).
(Source: http://www.dol.gov)
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